I took my second FTP test today and felt a lot of happiness and sadness at the same time, and just felt the need to write my first post here.
I began having unexplained fatigue almost 4-5 years ago (I’m 39 now) and spent a couple of years going from doc to doc in search for the cause. 2 years ago, I got my first EBV blood markers read, and have been dealing with high levels ever since. Apparently my body will not let it go fully dormant and it’s been beyond challenging to try and have an active lifestyle & managing it.
For years, doctors would tell me, “you’re a healthy young man, just take it easier”. But I had been doing long distance/endurance running/riding since my late teen’s, so I knew my performance shortfalls meant something was wrong. It was beyond frustrating to be told I looked healthy.
I’m grateful to have a doctor now who at least has a really good bedside manner and has helped me find the problem. Yet with no real solution, it’s been really hard to stay positive each time the virus flares up causing me to take 2-3 months off. Then when I start back up, I feel like I’m starting biking for the first time ever.
I started Trainerroad, crazily at my lowest, as a way to better gauge my exertion and learn more about pacing myself, which I’ll admit I never played close attention to b/c I never really struggled with it. I always found a balance to train for numerous century’s and MS150 rides by just following my resting heart rate and listening to my body.
With my FTP now up to 141 from 90 almost a year ago, I’ll take it as a sign to keep going. I’m grateful for the 20-30 miles a week I can get in, though I’ll admit in my head all I think of often while riding is how I did 100+ routinely just a few years back. It is getting better though in letting it go.
As I start my next round of managing and moving forward, I would really welcome any advice or expectations to help guide me.
There’s an over the counter product called Lauricidin that has been shown to be effective against EBV
I’ve been dealing with EBV since July of 2023. It seemed like I was over it after about 4 months but its come back as I have increased my training load. Unfortunately I don’t think there are any quick fixes. Getting lots of rest is obviously important. The difficult part of resting a lot is that you can get unhealthy if you rest to much. So I’m struggling to find that balance. How much to exercise? How hard so I stay healthy but don’t overdo it? Trial and error I guess. I know Mark Cavendish dealt with this and I’ve tried to find any info where he talks about getting past EBV. But unfortunately in EVERY SINGLE INTERVIEW the host’s want to praise him for talking about his depression and nobody asks how he got past EBV.
So I’d say rest. Exercise when you feel ok. But don’t overdo it. Focus on diet and sleep. Good luck.
Did you make progress? I have been struggling with 8 months of EBV reactivation. I am an endurance athlete who basically can now do nothing strenuous
Hi Dan.
I’m sorry you’ve been dealing with this and it’s taken you away from what you love. I very much understand how hard that is. Be patient first and foremost.
Now I’m not a doctor, and my situation is likely different than yours, but I’ll explain what I’ve learned about EBV since I posted this.
My EBV “reactivation” was a red herring, I believe. My IGG levels would always show as “I must have just gotten over a recent infection cause those levels are high.” And then those “post infection levels” just stayed high or would get really really high when I really felt bad.
As the years went on I developed some kind of UMN neuromuscular disorder with an immune component. My neurologist says it’s an MS mimicker. So I have some kind of unknown immune issue that’s likely causing my muscular issues.
Needless to say, my EBV levels have stayed high since those first “reaction” days and tests I took. And my own opinion is that it’s my immune system disfunction that’s just causing those markers to be high.
All I’m suggesting I guess is that I believe now that high post EBV levels are just a sign something was changing in my immune system. Once I gave up trying to “fight EBV” itself, I was able to start looking for other things.
So my advice, if your levels are “high post/recent infection” is to look into your overall immunity and the protection and maintenance of that. Diet, sleep, rest, extended leave from intense workouts, blood work for other areas, etc is what I wish I had done sooner.
Now if your EBV levels are showing reoccurring current active infection that’s a completely different problem and there are infusions and other pricey types of treatments to try and help it. But either way it requires rest.
Hope this helps.