When I read this article, the hair stood up on the back of my neck. March I was diagnosed with BPH, I was diagnosed with prostate cancer in April, and in May had a prostatectomy. The whole thing seems like a whirlwind dream.
I had no idea I was having problems! It was and is all a shock. I ended up being diagnosed with BPH, an MRI, then a biopsy that found cancer, and then the surgery! BAM BAM BAM: March, April, May…
I wanted to put off the surgery. I had heard all the horror stories and thought that it was the end of the end, and everything would change. Looking at it now, sure, some things did change, and I’m cancer free, but the thing I’d like to say is I could have been in his shoes!!
I had a gigantic prostate, and NO SYMPTOMS. Peeing at will, no blockage, no difficulty. The only indication something was up was my PSA (which had been trending higher over the years), which after taking 2 weeks off riding dropped to just above what they consider ‘high’. I had been referred to urology, and the doc recommended, practically demanded, an MRI. (He was an older doctor, just a couple years older than I am, and yet he was up on current treating modalities) The finger only allows for a limited amount of contact with the prostate, and ultrasound isn’t able to clearly view it with all the other stuff in that packed area. The MRI showed BIG, and also indicated possible CA. I was biopsied a couple of weeks later (the process sounded horrific, but I had no post-procedure issues). They took 18 small plugs, and some of them had active cancer. I was judged to be an 8 on a 1 to 10 scale.
Between the MRI and biopsy I consulted with a surgeon on options. He said that it had to come out anyway because it was so large and would schedule the procedure based on what the biopsy showed. Getting the results, he put me on the schedule, and I was on the road to somewhere… They had a cancellation and I had just days to psych myself out over it. (Good call on the timing)
Post op, I was ruled a 7 on the 1 to 10 scale. (Stick with me for the end) I’ve had issues post-op, but the biggies resolved within 6 or 7 weeks.
At the time I thought I could put this all off, that I could wait a couple more years before going through ‘all that’.
Two weeks ago I heard about a friend of a friend who was in a similar situation, a bit younger, but had been diagnosed with the same progression I was. Oh, BPH, Oh, cancer, but under advice of his physicians, put off the operation for 2 years. Then, he had an MRI of his head. He was having minor headaches, and they were apparently ruling out some things, and saw something. They scheduled a PET Scan, and found plenty more spots. He went from stage 0 to stage 4, and the cancer had metastasized to his brain, with several bone mets, along with other areas. So taking a year or so off allowed his cancer to spread like wildfire, and I was thinking I could take a year or so off too.
The moral of this story I guess is GET TESTED, get a PSA. Get an MRI, if only for a ‘baseline’. Act on any evidence they come up with. The biopsy was inconvenient, but wasn’t anything at all. Getting the diagnosis and having a clean PET scan was such a relief, and post-op, I can’t imagine what it would feel like knowing that I had cancer because I didn’t act on it at the time. (I wonder what steve jobs went through, wow)
But my heart sank reading this article. I’ve met and heard from so many men all of a sudden that have had prostate cancer and a prostatectomy. It almost seems like an epidemic. Like women having breast cancer, so many being diagnosed with it. Shocking… And TALK ABOUT IT! If you have had prostate cancer, talk about it. It seems like there is a measure of silence surrounding prostate cancer. It is also a ‘silent killer’. I’m shocked at the number of men that have died of prostate cancer. And I could have been one.